Action for Pulmonary Fibrosis

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Welcome to Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis (APF) is the UK’s leading patient charity for people affected by pulmonary fibrosis. We fund research, campaign for improved care, and provide trusted support and information.


Our ambition is bold, our focus is clear, and our work is driven by people living with pulmonary fibrosis. We are working to ensure that no one faces pulmonary fibrosis alone and that fewer lives are lost to this disease.


It's an exciting time to join us as we're growing fast, and currently recruiting for a number of key positions including:


  • Head of Support Services Band 5: £50,000 - £59,000 per annum


  • Healthcare Professional Education & Engagement Manager Band 3: £34,000 - £37,500 per annum


  • Senior Education & Events Officer Band 2B (Executive): £31,000 – £34,500 per annum


Please see the Opportunities page for more details of these roles.



Who we are


APF is a national UK charity. We bring people together to drive change so more people affected by pulmonary fibrosis (or lung scarring) can live well for longer.


People living with lung scarring, their loved ones and the professionals caring for them are at the heart of everything we do.


We provide expert support, information, education, help a growing network of support groups and raise awareness of pulmonary fibrosis. We collaborate to drive change that improves health and care and we provide vital resources to researchers, bringing hope for new and future treatments for this devastating disease.


An estimated 150,000 people are living with pulmonary fibrosis in the UK. Despite pulmonary fibrosis being as deadly as some cancers, it takes too long for people to get diagnosed, treated and supported. This shortens and devastates lives and leaves people feeling alone, confused and frightened.


Together we will stop lives being lost to pulmonary fibrosis.


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“We are passionate about making a positive difference to the lives of people living with PF, their families and caregivers. Everything we do supports this, ensuring we make the biggest possible difference for people now and in the future.


None of our work would be possible without our amazing staff team, combined with our volunteers and our wonderful fundraisers and donors.”


Dr Michael Stubbins, Chair of Trustees


Our history


Since our founding in 2013, Action for Pulmonary Fibrosis has grown from a grassroots initiative into the UK’s leading charity for people affected by pulmonary fibrosis and a world-leading voice in pulmonary fibrosis patient advocacy.


Born from the vision of patients and clinicians who knew that people deserved better, APF has become a driving force for support, awareness, research and policy change.


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